Tapering GP Issue

Hi hope your well,

As mentioned in previous posts started tapering my meds. Had planned to make it as slow as possible. The psychiatrist recommended reduce to certain amount and see what happens. I take medication from GP by injection. I discussed with my GP I would like to reduce slower than the big jump psychiatrist suggested. He reluctantly agreed.

My mother went to collect my injection week or two ago and GP ignored what I had discussed with him and reduced prescription by the big jump I was trying to avoid. My mother all fairness reacted well enough when she rang me to see what was going on. She got the pharmacist to get the dosage I requested to bring to GP and rang GP and gave him bit of a bollocking.

When I went to GP he just blamed the pharmacist and also just said that was what psychiatrist prescribed. And more or less ignored what I had requested. The more I deal with the guy the more of a complete twit the guy is.

So I have had two injections at reduced dosage and so far it’s going well. However I have noticed a lot of dizziness. Considered getting train from work instead of motorcycle as my balance is bit off but I was fine. Will mention to my GP but given he’s a fucking Moran I don’t expect much of reaction.

I am working away and doing little yoga , somewhat cautiously as balance bit off. Doing a bit of meditation I enjoy it, sometimes I am good at it other times it can be a struggle. Started going for long walks at the weekend get the endorphins going , might hopefully offset effects of tapering a bit.

Decided not to react or interact with the voices in my mind as much but pay attention to what the say without reacting 98% of the time.

As usual when I mediate I can see images , mostly nice ones these days. I believe the last one was of a nice pond with a gold fish in it.

Got stuck in to my next course but it is largely DSM based and not very good.

It is lovely weather here at the moment plan to go for a walk most days after work get a bit of fresh air most days. Good for the mind.

Been watching stand up comedy’s on Netflix some are very good. Will have a look for one now and see if any good.

Hope this post finds you well.

Keep up the good fightโœŠ๐Ÿป

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Tapering with medical support.

It’s a lovely day here in Cork. Hope your well.

It’s started to get busy at work again. We started doing overtime again did some 10 hr days feeling bit tired now but extra money will come in handy.

Still doing yoga and meditation I genuinely believe they benefit the mind and body. Just watched a great Ted Talk about meditation it’s worth a look if you have the time. See link below.

Ted Talk

Was at GP earlier he eventually got letter from the psychiatrist who was good to her word and said to start a trail at a reduced dose of my injection to see what happens. As I expected the psychiatrist wanted to reduce at a much greater rate than I have read was safe. I managed to talk my GP into reducing at a slower rate to the amount the psychiatrist recommended. So now just have to see what happens.

I still experience the same stuff I experienced 10 years ago when I was quite bad And really struggled. Since then I have just changed my perspective on my experiences. I have done what I can to help myself not be a victim anymore I guess it’s a work in progress. If I compared my outlook 10 years ago to now it is vastly different. Back then I did not want to live and felt completely powerless. I can still struggle and have bad days but I love life even if it can be shit it can also be beautiful.

I also went vegetarian two weeks ago. I was thinking about it for a while and there was a voice of a child in my head objecting to eating meat so am giving it a go. Eating a lot of fake meat stuff it tastes fine but I want to make more of an effort to eat fresh food. Just had one of my usual voices Mary happily inform me she could not give a fuck about me being vegetarian with a laugh.๐Ÿ˜‰

Keep up the good fight โœŠ๐ŸปโœŠ๐ŸปโœŠ๐Ÿป

My Meds

Was just out for morning walk with dog thankfully got back before the rain feeling in Good mood.

Asked the doctor yesturday about reducing my dosage of risperdol but he said no. He said he would set up a appointment with a psychiatrist to discuss if I wanted. I know what psychiatrist would say before I go so I said I would think about it. The doctor asked me are the voices just in the back ground now I replied the meds have never affected the voices they have always been there. He quickly jumped to but the paranoia and thoughts of people after you would you be able to control this without meds. I should of said I have been learning by trial and error for years now and the bloody meds have never done what psychiatrist have promised but I could see he had his mind made up. For a doctor giving me various meds for last 10 years or so I believe he knows very little about my state of mind. I have been telling people around me that the meds do very little if anything for a year or so but no one seems to hear or be interested in this statement. They believe the meds and not hard work I have been putting in of just getting on with things is the reason I am doing well now. I find it amazing that everyone around me seems to know what’s going on in my head better than me ?

I was given information about someone who came off these type of meds before and the GP they have worked with. I send email to the GP to see what they will say. If they will work with me it would meaning changing GP and wrestling control of the meds from my mother. If this happens there will be much grief but I think it’s worth it. I can’t believe the only decision I have ever made in 10 years on meds is the one to reduce my dosage last year which my family flipped out at and rang my GP who almost changed his mind. OK rant over.

I can have trouble sleeping the meditation really helps to get back to sleep with a bit of effort. When you check online insomnia is listed as side effect of risperdol but my GP is denying this it’s hard to tell who to trust about the subject. I have asked about 3side effects I found online and my GP has denied all of them I don’t bother even ask any more. OK rant definitely over.

Still doing meditation and yoga the instructor mentioned 15 mins of yoga each morning is better than an hour class once a week been doing 15 mins of yoga each morning since. I will still go to class more to just get used to be around be people.

Work seems to be going well. There is a yoga day next weekend might give it a go see what happens.

Hope this post finds you well.๐Ÿ™‚

Keep up the good fight.โœŠ๐Ÿพ

Hearing Voices and meditation.

TW slight mention of CSA.

All is going as well as could be expected at the moment. Going to yoga class’s and it’s fine, I am about as flexible as a brick. Doing mindfulness course online and it helps me rethink the way I look at things. Practising different types of meditation a little most days. Work is going well with usual pressures and my awkwardness around people impartiality woman.

I mentioned in previous post I get tactile sensations (feeling of being touched with no one there) which reproduce sexual abuse I endured as a child. If I allow it this can be upsetting experience espically when voices kick in claiming they are doing it and there is nothing I can do about it and they don’t care. On top of that 5mins ago they one claimed there is something wrong with them and that they are evil raping bastards. About 2 days ago I decided to stop engaging with voices as they claimed to cause this to happen not sure if they do it’s hard to tell. Years ago I tried to stop engaging with voices and could not but for the last 2 days I have more or less ignored them. 

While meditating last night one of them got very angry and aggressive and abusive and threatening . I just sat there observing this going on with out reacting and the voice eventually calmed down. They have been quiteish most of today but I still refuse to interact with them. Considering interacting with them next week but not sure. I have been interacting with them for about 10 years both good and bad this is a new experience for me and I guess them. They have said things which would imply they want to interact too they just don’t want to but for most part it’s been quite.

My parents moved into my house years ago when I was unwell it definitely looks like they are not moving. I spend most of my youth wanting to get away from them. I buy a house and they move into it. I genuinely dislike being around them. My mother is the most negative person I have ever known. My father has no concept of personal space and treats the house like a workshop there can be video machines all over parts of the kitchen. Also one of them is coming into my room to turn off device I listen to before I sleep , when I am asleep. As I am 41 old man I find this very unacceptable and uncomfortable. I plan to get rid of the device and placing something against door to stop them entering my room when I sleep. The levels of aggression in the house from them can be quite high. I am trying to practise mindfulness techniques of embracing the irritation I feel towards them but it is proving very challenging.

I was saving for kitchen but I have decided to try to figure out how to buy a second smaller house to get away from my parents. I am trying to make peace with them in my house but I am having difficulty in doing so. I have never really been close to either.  I do the lotto regular in the hope, like every one else I guess, to get lucky and get out of here as quick as I can.

Trying something called TRE tomorrow for the day, will try to enjoy it and not be self conscious. I would imagine I will be my usual awkward self ๐Ÿ˜‰

On mindfulness course watched talk about proven ways meditation can effect pathways in the mind. Included link here I thought it was interesting. Richard Davidson

Hope this post finds you well

Keep up the good fightโœŠ๐Ÿป

It is true what they say you can’t please all the people all the time and that’s just fine.

The good with the bad

Trigger warning mention of CSA 

Just want to jot down some good and bad points of my week.

I came out to work a while back about having the label schizophrenia. They seemed fine about it. 

I have a habit of laughing when engaging with the voices in my mind from time to time. I got paranoid that people in work where thinking I was laughing at them and hated me. I sent boss email during week saying if people have an issue with me laughing from time to time to myself that they should check link below about 30 secs in woman explains she was laughing to herself having conversation in her head (video is about 1:30 secs long worth look interesting woman)

SchizophreniaNYC
I got email few days later saying they would have a meeting to discuss and he would like to bring woman in office into meeting. It went fine they asked how they could help with my situation and asked what it was like to be schizophrenic. I have never really talked to someone about what it was like had no clue what to say. I said I can be paranoid people where against me. And he agreed that I could send an email to himself or woman if I was having an issue around something to check if it was an issue (this could prove really useful as I can get worked up and paranoid about trivial events) They also said they never noticed me laughing that I just came across as quite and did my work and went home and would never have guessed I was schizophrenic. I mentioned it was important to me that someone with my label is able to hold down a job just like everyone else. They said they where very happy with my work it was good to hear this. So it looks like I am genuinely paranoid about things hmmm……

I also noticed I could not say the word schizophrenic I kept saying someone with my label. I really don’t associate myself with the word. I also described my thoughts as interactive as in they talk back to me. All in all I believe I represented someone with my label well.

I went to yoga during the week, I was about as flexible as a brick but I enjoyed it will go back.

I also got the notion to start a local voice hearing group at weekends but no clue how. Got on to guy that knows something about this stuff by email he was on holidays but asked by email would I be interested in being on the committee of the voice hearing group I said I would be interested. No clue what I would need to do but be interesting to see where it goes. He’s back end of month.

After all this positive stuff I felt very strong tactile sensation (someone touching your body when no one is there) in part of my body that was most traumatised by sexual abuse as a kid.(it can feel like a reproduction of the abuse) The voices claimed they where raping me and I was enjoying it. To say I was jumping around the chair a bit would be understated but as usual I got my work done and got through the day. This can be a very stressful situation but when I went for a walk at lunch I pointed out to the voices I had not got upset with them and start fighting with them which at times is all they seem to want. The positive energy in me was strong enough to hold out. I can feel it at the moment I can’t help but think part of me can’t accept things are going well and almost needs to feel traumatised but I am not a child anymore and not a victim whatever my body feels my mind is free.

Keep up the good fight.๐Ÿ™‚

The highs and lows of my odd little life.

Trigger warning “depression”  “suicide” “foul language” “CSA” 

Have not posted in a while was trying to do one post a week this year. Was having bit of a tough time for a while but I feel much better place now, so I plan to rant on about it below.

Not sure where to start so I guess I will just start writing. I have a few personal issues which I believed stemmed from CSA I survived as a kid. I don’t like to blame everything on my youth but not acknowledging it has had an impact on me just does not do justice to the effect it has had on me and doing my damdest to ignore it for years (seriously if you have any kind of trauma in your past try figure out way to deal with it , trust me ignoring it does not work I tried).

So I basically seem to watch everyone out of the corner of my eye pretty much all the time. Which frankly freaks people out especially woman. On top of this I can stare for few seconds at men and woman inappropriately which frankly also freaks the fuck out of people. Seeing people react to this does feed into my fears (unusual beliefs, paranoia whatever label you want to give it) that I am basically the most evil thing in creation. As you can imagine this is not a good feeling.

In work it felt like I was in a pressure cooker situation and something was going to give. Purely from the inappropriate behaviour I was showing. The work environment was utterly toxic which did not help anyone’s mental health in work whatsoever. I could hear the woman at work discussing angrily with the boss about this behaviour when I was not in the room (since I hear voices not sure if this was real or just my mind warning about my behaviour). I have practising various meditation techniques from the start of the year which are helping but there is still a massive issue.

 I had asked my family’s and friend and previous therapist advice on telling work I have issues with my mental health, I got an overwhelming no from all of them. So I was sitting there and felt I was going to quit and thought fuck it I have nothing to loose I am basically going to tell my boss that I have personal mental health issues.

I basically sent him an email stating, I can act like a right odd ball which I believe stem from childhood trauma and a link to Eleanor Longden Ted talk saying I have some similarities with her life experiences. And if he can’t work with me because of this to please keep this information to himself. 

5 minutes later he called me into quick meeting, which he said my job was safe and he was happy with my work. And that it takes all kinds to make up a work office and that other people in the office have there issues as well and that’s fine and he would look at link later. The office environment seemed to change to some extent over the next week or so it did not feel as toxic but I basically felt I had just bought myself time to figure out how not to act odd. I would have liked to thank him for pointing out it takes all kinds to make up office environment. Up until now I would simply quit a job if there was any drama. I guess drama is normal in work life I just didn’t figure that out.

It was effecting me at home as well I was feeling very depressed. It really is not nice to feel like creepy old guy in the office and in life in general. I went to my councillor which I had not seen in a while to try to discuss but he did not communicate anything useful to me utter than I was not making any eye contact which he said I was very good at before. He also said I should just stop looking at people , it’s hard to describe a behaviour which you do even do you know you should just stop but I was utterly fucked if I could figure out how to stop acting what I would describe as being hyper vigilant and traumatised. I left feeling more depressed than I went in and felt more depressed for few days after the session. I started having thoughts that this is simply not a life worth living (one of my critical voices said she does not want to die at the time). I just felt I was going to continue to act utterly inappropriate around people for the rest of my life and that was that. I currently choose not to interact with people because of this. I knew that these thoughts pattern can go to a very negative place. Around the same time I saw something on twitter from another CSA survivor that you should look for a trauma based therapist.

So I popped trauma based therapist into google and found a woman locally who seems to know  her stuff been to one session. With out going into to much detail she agreed that my behaviour is related to CSA trauma as a kid but it had been going on for over 20 odd years so not sure if it’s habitual as well at this stage. We mapped out various things on paper which seemed to make sense and I have not really been able to communicate to my previous therapists. She also gave me a book . See pic below. I thought I would fly through it but it’s tougher than I thought but I get really good vibes from some of the excercises espically setting boundaries around yourself. I feel it has helped me understand certain aspects of trauma I have never understood.

During this time I spotted something Jacqui Dillon was doing on her web site and decided to contribute.  My story is Under Mike and my odd little life if you want to have a noise. See link here Testimonies .

So that’s me finished ranting if there was anything I learned from this little episode in my life it’s that it’s hard to live without hope.

As I’ve said I feel in a better place know. Also I genuinely feel meditation every morning helped to get me in a positive mind set every morning despite how I felt in general. I honestly thing it helped me through a tough patch. Can’t recommend it enough.

Hope this post finds you well.

Keep up the good fightโœŠ๐Ÿพ๐Ÿ˜€

Mind Over Marathon and my meds

Had the 2 episodes of mind over marathon on BBC recorded watched them yesturday. I won’t lie it brought a tear to my eye. After watching it I felt inspired to start training for another marathon. I particularly liked were it portrayed the idea that people with a mental illness are part of society not outside of it. One person also touched on the idea that the label mental illness is bad because it has the term mental in it. Which seems to describe something else in society not someone who is like every one else just can sometime have trouble getting by. It got me thinking mental illness can be changed to someone having a social disturbance! By which I mean they are acting in a way the society there are in would define as unacceptable. Or there having difficulty just trying to cope in the society they are in with the life experiences they have had. Not sure if that makes sense but it does to me ๐Ÿ˜‰. It definitely worth a watch if you can find it. 

Was listening to  Pretty sane (great blog by the way you should check it out) on the radio this morning and it was very interesting. It got me thinking about my medication as best as I can tell antipsychotic meds are supposed to get rid of Phychosis and voices but my meds are not doing any of this. So I guess I am going to question my GP on this. I would suggest either different meds or coming off them altogether. I am currently on a reduced dosage than I used to be and I am managing fine despite being told by everyone around me I would basically end up back in hospital. In the last while or so I have learned that stress is a massive factor in my symptoms. Like when I took on to much extra work and not giving myself a break on weekends my visual hallucinations kicked in , I can only describe them as seeing white light flowing like you would see a fire except its white light.  I cut out the extra work completely and the visual hallucinations seemed to cut out. I see visual hallucinations as a early warning signal from my brain I am under to much stress and need time for myself. I get a range of other symptoms which I gradually learned are just the internal workings of my brain from trauma in my past. The GP can sometimes just fob me off when it comes to meds probably because of my history of none compliance in my past which I understand but I not in the same position I was 10 years ago, I would imagine few would be, anyway I intend to question GP get his opinion.

I also saw some information on hearing voices that basically the society you are in shapes the voices you hear either there violent or playful. The link here is one study on the topic it’s worth a read if you have time, it says it may have implications for how schizophrenia is treated. News report voices shaped by local culture.

I usually struggle to sleep but I get by, unfortunately my father woke me during the week and kept waking me during the night with noise. I was knackered by Thursday and decided to skip my run that night. I also started to monitor my resting heart rate in the morning and my garmin watch has a stress score I think linked to HRV. It was going fine until Friday morning it dropped by a load and the next day it was maxed. My heart rate stress went from about 12 out of 100 to 96 out of 100. The only things I could thing of affecting it was general tiredness possible the effects of my risperdol injection and having my bloods done day or two before. It’s hard to tell. I usually am slower at running after my injection but I have never monitored my heart rate through this before. So if it is my injection that affects my running I am going to have to adapt my running plans around it. I intend to monitor and adapt my running accordingly. It might be best to take a day or two off not sure but heart rate score was 56 out of 100 today so it seems to be recovering.

 I came across a game in which the main character has a mental illness. The makers where in touch with people who hear voices like Rai Waddingham to get the effect of the mental illness as real as possible. Link to YouTube promo here worth a look if your into games YouTube link.

Well I have ranted on long enough.

Hope this post finds you well.

Keep up the good fight.๐Ÿƒ๐Ÿผ๐Ÿ‘๐Ÿผ